Become a part of our online scrapbook by sharing your own story about how hearing loss has affected you. Inspire others who are touched by hearing loss so that we can help raise awareness about the prevalence of hearing loss and what we're doing to help make it a thing of the past.
Our daughter Elana was 6 months old when she was diagnosed with a severe-profound hearing loss. She is now almost 23 years old. I will never forget the moment when i knew our world was about to change. The audiologist kept saying "let me check the machine."
Ever since I was six months old, I have lived with hearing impairment. Mom said I cried all night and slept all day for the first 6 months of my life. I never heard a bird sing, a dog bark or the wind howl until I was nearly 25 when I got my first set of hearing aids. What a difference it made.
My daughter did not pass the newborn screening in the hospital. The tested her multiple times before discharge and she never passed. We have always taught her to be proud of her hearing aids and not let anything hold her back.
When I was about 3, my parents noticed I wasn't hearing good and withdrawing in group settings. Had me tested and at age 4 got my first set of 4 sets of tubes. With that first set of tubes, my mom describes watching the scenery like having new pair of glasses on but I could suddenly hear all the cars, wind, birds!!!
When I was pregnant with my daughter Ava, little did I know that catching a cold would take her hearing away. But it did. Congenital CMV is the most common non-genetic cause of hearing loss in children.